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Nursing Ethics, Vol. 12, No. 4, 360-369 (2005)
DOI: 10.1191/0969733005ne801oa

The Ethics of Self-Management Preparation for Chronic Illness

Barbara K Redman

Wayne State University, Detroit, MI and Visiting Scholar, University of Pennsylvania Center for Bioethics, Philadelphia, PA, USA, ae9080{at}wayne.edu

While nearly all patients with a chronic disease must self-manage their condition to some extent, preparation for these responsibilities is infrequently assured in the USA. The result can be significant harm and the undermining of a patient’s ability to take advantage of life opportunities and be productive. Agreeing to care for a patient involves a moral responsibility to see that she or he receives the essential elements of care, including the ability to manage the disease on a daily basis. The research base for the efficacy of self-management and for how patients can be prepared to assume it is sufficiently strong that health care professionals must advocate for its inclusion in the routine evidence-based care of individuals with chronic disease. Because patient education is central to nursing’s philosophy and practice, the profession should play a major role in removing structural barriers to self-management preparation and assuring its provision to a high standard of quality.

Key Words: chronic disease • ethics • self-management


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