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Nursing Ethics
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Safeguarding Being: a bioethical principle for genetic nursing care

Ellen Giarelli

Center for Autism and Developmental Disabilities Research and Epidemiology, University of Pennsylvania, School of Nursing, 420 Guardian Drive, Philadelphia, PA 19104, USA, giarelli{at}nursing.upenn.edu

This philosophical inquiry examines the nature of the technology of genetic predisposition testing and its relation to patients as whole persons. The bioethical principles of nonmaleficence, beneficence, autonomy and justice are judged insufficient to resolve issues associated with use. A new principle of ‘sustained being’, drawn from philosophical propositions of Pellegrino, is suggested. The new principle is suited to an evolving practice and is compatible with consequentialist, deontological and relational ethics theories. The notion of ‘taking care’ is related to nursing in genetic health care to form a standard of conduct and a moral imperative to ‘safeguard being’.

Key Words: bioethics • genetics • nursing • technology

Nursing Ethics, Vol. 10, No. 3, 255-268 (2003)
DOI: 10.1191/0969733003ne604oa


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[Abstract] [PDF]